Tuesday's Page

This web page remains up and occasionally updated to serve as a small, electronic monument to our baby. Feel free to download pictures, leave comments or just read old posts. Thank you. All of you.

Saturday, September 23, 2006

Saturday, September 23, 2006

We got to take Tuesday outside very briefly today. We'll take her out for longer tomorrow.

















































Tuesday had a pretty nice day of friends and family visiting. She got some painkillers and relaxers and so was kept pretty comfortable and asleep. I think the total amount of time she wasn't being held by either myself or Christine came to about an hour, she slept with us last night and spent the day being in our arms.

She seems very tired, which makes sense when you consider that she is expending a great deal of energy just breathing. Otherwise, i suppose one could say she's doing well. Actually, i'm just going to say that she's not in any pain and she's very loved all the time.

We don't have an estimate of how much time she has left with us. We plan on being with her a lot in that time.

Before i forget and before anyone starts to wonder, we very much appreciate everything that everyone has done for us, the caring and support we have received through all of this have made such a difference for both of us. Thank you all.

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